Second visit to my new Neurologist

Today was my second visit to my new Neurologist.  He remembered me!  I am impressed.  The last Neurologist treated me for 18 months and acted each time I saw him like I was a NEW patient!  It was like that movie, "50 First Dates!"

I have been having issues with Sinemet.  It makes me drowsy, with uncontrolled yawning, nausea and even dry heaves.  My nose even runs when this hits me.  I can control the issues if I eat a massive meal before I take the Sinemet, but that has it's own growing issue.  SO I discussed this with my new Neurologist and he said; "You have Lewy Body Dementia and Sinemet does not help people with LBD.  It may even make your hallucinations worse!"  WOW!!  That is the first time I ever heard that!!  He is also taking me off another drug that is predominantly for Parkinson's!  I am impressed, someone who actually know how to treat Lewy Body Dementia.

Now I realize this is a journey and not a race.  But I am happy to have a neurologist that listens to me and seems to care about my well being.  My neurologist in Virginia was a "Bull Dog" when it came to diagnosing my disease.  She even used the University of Virginia Medical School to get a second opinion and verification of her diagnosis.  But after that, she was really done with me.  I had the disease,  it would probably lead to my demise, take your pills and shut up.   This Doctor is different.  He wants to help me find the best way to live with this disease in a manner that gives me the best quality of life!   Again, I am impressed and happy.

I don't see him again until late October.  By then, I will be off of one drug and another will be cut in half!  I believe we are on the right path!!