Wednesday, July 4, 2018

Happy Independence Day!!

It has been a while since I posted.  Anger, aggression, depression, and anxiety, have been my constant companions and I have had to find new ways to deal with these issues.  They are not show stoppers but learning experiences for those of us with LBD.  Instead of being negative about these issues, I am finding positive ways t deal with them.  I have done a considerable amount of Internet research from reputable sources like the National Institute or Health, LBDA.Org, Alz.Ord, and other sources like Mayo and some of the other Countries Dementia sources.  All of these organizations express the same ideas about dealing with these issues and I have adopted many of them with recent success.  Yes, I am feeling better!

What did I change?  First of all, I am staying away from loud noises, crowds, angry people, and unfamiliar settings.  I spend more time in "The Cabin".  Some of this tie is along, some is with Zeus, and some with my Wife.  She and I eat meals in the Assisted Living dinning room that is much quieter and smaller.  Sometimes we eat in Her apartment.  When we go out to shop, it is short, one stop events during the more quiet times for shopping.  I am also sticking close to my normal routine.  Routines are my friend and I am most comfortable when I am in my routine.  I limit conversations to people I know, like, and consider non-threatening!  That means people that don't call me a "Liar" when I say I have LBD!

Even Zeus is being more quiet and reserved.  Yesterday, he took a nap with me in "The Cabin".  He has never settled down when both of us were not in "The Cabin".  But yesterday he wanted to take a nap.  Another interesting Zeus issue.  He has LEAD me to "The Cabin" at least three times and wanted to go in to my room.   He know that is my quiet place and when we walk, he seems to sense I need quiet and away he goes!!

Those of us with LBD and other Dementia's can be independent.  Yes, we no longer drive, run the budget, or do many of the things we once did,  But we can control our environment to help us cope with LBD issues and that is TRUE Independence!


  1. Don, thanks for all the good words. I would add one additional item to your list of issues: Pain, plus weakness and fatigue all from the Parkinson side of our problems. I am having real trouble with all the issues you listed, but also from pain, weakness and fatigue. Yes, being alone and having a routine are very important to keeping things from running off the rails, at least for me. And the darn Parkinson stuff of losing balance, tremors, tight muscles and joints, and cramping. I can find nothing that seems to work on the Parkinson stuff that I am left with after the Sinemet has done its job. I am going in early August to a new MDS and a new dementia doctor, since I now live in CCRC about 2 hours from where I used to live. Low blood pressure limits what I can do with Parkinson drugs, so I am not optimistic, and pain meds don't seem to do much for the pain. All I have to do is move some part of my body and I usually get instant pain until I can readjust to a new situation. Don't know if pain is a biggie for you right now, but let me know if you have any suggestions regarding dealing with the Parkinson stuff and the pain. Thanks for sticking with your Blog. It is in a way a real treasure. Take care. Bill.

  2. This comment has been removed by the author.

  3. Don, sounds like Zeus is becoming accustomed to his new surroundings and turned his attention to providing a watchful eye out for you...The 4th can be stressful for both man and his companions, glad your holiday was good,
    Take care and be well, my friend...

    Forgot to update my profile from unknown, all good to go