My head is pressurized, cannot regulate my body temperature, I have no idea what my BP is because I quit taking it weeks ago, but my hand and feet are freezing to the touch, My back hurts, I am having problem hearing because my ears are clogged, I ache all over, and I feel as bad as I have ever felt in my life. Truly! I did not feel this bad after my colon surgery! I am also having increasing issues controlling bowel and urine. I have had these issues in the past but they are increasing. Emails with the neurologist have not been fruitful and my GP got her degree from a Cracker Jack Box! Real medical care in Pensacola, or every south of Atlanta, west of Miami, and east of Houston, is nonexistent! Not to mention, most doctors I deal with don't even believe or care that I am suffering.
Am I overstating things? I don't think so. After 6 years in this lost land, I have yet to find a doctor of any type that I would trust to lance a boil! Honestly, I trust Navy Corpsmen more than I trust Doctors in the South!!
The unemotional truth is, I am getting worse. The LBD is progressing and I am feeling the results of that progression.
Yesterday, our Grand Daughter in Law, who is an RN student came to visit. I really love her and appreciate her attitude towards my disease. She real cares about ma and asks probing questions to determine how I am doing. It was great visit.
So, how this goes is anyone's guess. I am going to contact the neurologist again and see if there is nothing we can do to help me feel better. I do not feel confident this will succeed.
I just emerald my neurologist with all this info. We will see what tomorrow brings.