Friday, February 17, 2017

Waking up disoriented and frightened!

The other night, I was just drifting off to sleep, alone in our bed, and I sat bolt upright completely unaware of where I was.  I did not know what State, City, home, room, or even the day or month!  I was lost.  It took a few minutes for that to pass as I looked around the bedroom and began to recognize where I was.

This has happened before, but this time I was more frightened.  

I had my six month check up this week with my Neurologist and she spent some time questioning on this event and then connecting it to my hallucinations.  They may be related.  I had not considered that.   But then, I am not a Neurologist.

We also addressed m night time anger and agitation.  I was diagnosed clonazepan  to take at night to help me with this.  I took it early in my journey and I remember it helping.  My Wife has a different memory of this drug.   One of the doctor's here in Pensacola changed it and I have had night time issues since then.  I hope it works this time.

Taking different drugs is an experiment every time.  We will see how this goes, starting tonight.

18 comments:

  1. I hope it helps you when i took it it was a disaster made me much more angry and agitated and for lack of a better word crazy i have a problem with some medications that my dr prescribes so it could be just me as I understand klonopin works well for others good luck my friend

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  2. Have a quick question have you or any of your readers been prescribed Seroquel and if so did it help

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  3. John I did, but have to ask the wife why we changed, will update.

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    1. Think it made me really tired, per the wife.

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    2. Agree I have been taking it for three days and I am very tired they gave it to me for my hallucinations I will keep you posted as to whether or not it is working

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  4. Copy John. Have you already been diagnosed with LBD?

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  5. Yes over a year and a half ago. It's awful everyday it's something new. How about you this blog has been so helpful to me silverfox is a good guy

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  6. Hi John, no, please see my post for 14 Feb, right under yours. I'm at the point of telling them that's what it is, so put it on paper.

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  7. Yes I remember it took about a year testing etc for me to be diagnosed I have two neurologists one at mass general in Boston and one locally like you I figured something was up I am on excelon,Zoloft and now seroquel they took my drivers license away and yes people tell me you look great and I get the feeling they think I am faking it however I am an elected official in Massachusetts and decided that the correct thing to do was to go public so that has stopped most of the questionable looks I wish you well it is like a roller coaster but I am afraid that most doctors have no idea what it is

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  8. Ahhh, so it's not just me. I would like to stay in touch with you John, your the only LBD person I've actually had two way conversion with.

    Thanks a lot sir, btw may I ask at what age this started for you? I just turned 59 last month.

    Jim

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  9. 64 and yes let's keep in touch my email is jlob1951@gmail.com

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  10. Silverfox your blog is great you have people talking ! Keep letting us know what's going on

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  11. I do hope they can find something to help. Please carefully document your reaction to the clonazapam from your perspective and your wife's. My husband took it and it exasperated his symptoms both physical and mental. But, as you well know, every person is different and what works for one may or may not work for another.

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  12. Kathy does he have REM movement disorder and if so, has melatonin helped? John same question? Mayo, has me taking it and has had some effect (45% ish)

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    1. Hi Jim, Yes my husband did have REM sleep disorder. I can't tell you how many times he "beat me up" in his sleep. I actually slept with 2 pillows one for a head block and one for a body block. We also tried Melatonin but he received no benefit from it. But, you never know until you try. I hope it works for you.

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    2. Kathy, thank you for your writing "Thief....", I've started reading. Sorry for your loss and pain throughout. God bless you!

      Jim

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  13. Kathy the same happened to me it was awful and yes Jim I took melatonin but did not help

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  14. Thank you Kathy and John,
    I seem to dream more now some without the RMD, When RMD, it's usually very violent in h2h combat, though sometimes funny as running, walking or climbing, all with my legs vertically moving. Pretty weird. I'm grateful to be able to talk to others, thank you and God bless till next time.

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