I have write that my leg pain has increased and has also progressed to my lower back. I have also written that finally have given in to using pain meds. Now, I am on a search for a non-narcotic pain per that works. My aversion to narcotics is based on the addictive nature of these drugs and the effect they have on my colon. I had half of my colon removed for a tumor 15 years ago and constipation has become a problem because of the LBD. So, I really want to stay off narcotic drugs.
I am trying Excedrin right now with limited success right now. I may try Ibuprofen tonight. I need to get this under control because the pain is preventing me from sleeping for any long periods. Last night, I finally got up at 3:30 AM and stayed up because of the pain.
I am not complaining but only trying to record this issue for everyone to learn from since we are our own support group. I find that my GP is useless for anything related to my LBD.The Neurologist is OK, but inexperienced. I have asked my GP and the Neurologist to set me up with a Palliative Care Physician, but to date, they do not think I am at that stage yet. I have a surprise for both of them; Yes I am!