I read an article in "Neurology Now" about communities and Memory Care facilities setting up areas for Dementia patients to socialize where they do not have to feel embarrassed or self-conscience of the disabilities they are experiencing. I thought, what a great idea. A place where I can be the way I am, without embarrassment or retribution!!
Forgetting words, loosing thoughts, forgetting names, and even getting sleepy, when I am in a discussion is embarrassing!! I used to be know in the Gunner's Mate community as a person with near total recall. Now, I forget my Wife's name!! And that IS embarrassing.
The other embarrassing thing is having my memory work perfectly when I am with people that know I have LBD! Yes, that IS embarrassing because it makes them say; "See, there's nothing wrong with you!!" And then I am on the defense about my diagnosis.
I would love a place that permitted me to be me! Me with all my issues, foibles, and faults. To be free to be the way I am with no fear of someone's indignation or judgement. And trust me, people DO JUDGE ME!! I have heard, too many times; You don't have dementia!