I am receiving more and port comments and emails from caregivers of LBD patients that are traveling the same path as I am. They look OK, act OK, talk OK, to the uneducated. They look normal to the people that do not live with the. Most people do not see them in a rage after the sun goes down. Their relatives don't see them do the crazy things that we do and don't understand why we get yelled at for them. Like making a paper hat at a Church meeting and then wearing it!
It is good for me to know I am not the only individual doing strange things and saying things that people are shocked by. My poor wife is constantly trying to keep me in line. Not because I embarrass her but because she is trying to keep me from embarrassing myself!
More and more, I avoid social engagements. Crowds or even small groups of people overwhelm me. When we go to Church on Sunday morning, I am frightened of the crowd. My vision closes down to a pencil point. I look around me, but I see little. I do much better at home.
So, I am glad my little blog acts a an avenue to bring us together!! I encourage more of you to join our support group!! We can help each other deal with the ups and downs of LBD. Thanks!!